When Nathan was tested 18 months ago his level was 2.01, 3 weeks ago his level came back at 7.62. That's a HUGE jump even the doctor was kind of surprised.
The only good thing about these result is he is no longer eligible to do a good challenge (where then make him eat his allergy under supervision and see how he reacts). This is a blessing. I can not imagine what would happen to him if he ever consumed a nut (of any kind).
18 months ago they called to confirm his appointment and told me to pack a bag as they were going to do the food challenge at his next visit. Thankfully they didn't as his reactions where getting worse just threw contact
Doctor has decided to keep him in his new inhaler daily till end of January, then I need to give it every other day for 2 wks, then every three days for 2 wks and finally ever 4 days for 2 week (good luck remember that schedule)
If at anytime his symptoms return or get worse I need to call his office and they will get us in with in three days (not bad for an office that is normally booking 6-8 months down the road). He has said that at this time he doesn't want to do any further test but if his asthma symptoms don't improve they want to do test for autoimmune disease (which is scary as it could be a number of things)
Now I don't know a lot about autoimmune disease but from what I have quickly read and previous new it could explain a lot about Nathan and his medical issues.
As you may remember Nathan was born with 2 pools of blood on his brain which were causing him to have seizures, he was also born with blockages in his kidneys and ureter that will need to be reinserted into his bladder (we go back in March for his next check up).
His food allergies started at 2 months old, diagnosed at 9 months olds, he's been test for diabetics as his sugar levels tend to run at the high end of normal, he has a rapid heartbeat, pale skin, increased appetite (without weight gain) and some other "small" issues.
Which for a "normal" person/kid 1 of these things wouldn't mean much however when you roll them all together it could lead to other issues.
So I'm still wrapping my head around all this new found information, praying that the new meds work and we don't have to do further test for autoimmune disease
It breaks my heart when any kiddo has to go threw these test but it's so hard to watch your own child to continue to keep going threw them.
Nathan actually had a small melt down at the doctors cause he wanted to go downstairs to give the butterfly another drink (aka give a blood sample).
Fingers crossed and prayers said that my little man starts to get healthy and stays that way!
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