As you may remember I have 3 sons (9, 6 & 18mths).
My little man (18mths) has had one heck of a journey so far.
He was born at "term" threw a scheduled c-section. Prior to his birth my ob\gyn had made a comment that his right kidney seemed to be enlarged and he would schedule an ultrasound on it with in 2 hours of birth. Yes we were concern but all in all nothing that we thought would be a life long battle, doc said its common to see it and once baby is born it turns out to be nothing at all (our fingers were crossed)
So on Sunday July 11, I get up as normal and go pee, but something is different. It just keeps coming, coming....could I just have broken my water???? I hae no idea. Yes this is my third child BUT I have never had a labour, never had my water break, never had a contraction (i know...lucky me)
So I give my niece a call and ask her what she thinks (at this point she is also pregnant with her 3rd all of which she ends up delivering drug free...crazy woman).
So we have decided that yes chance are my water has broke 24 hours before my scheduled section. So off to the hospital my mom and I go. Because I was scheduled for the next morning they never even checked me they just went ahead and called the doc on call and prepped the OR....I was shocked. I had talked myself into thinking I would just spend the night in the hospital and go ahead as planned.
The one good thing about this delivery is I was able to stay awake ( I think that's good???) My husband made it with minutes to spare (not that he was going in with me but it was nice to know that he was there)
So little man was born Sunday afternoon, a healthy (???) 10lbs 14ozs. Nurses all said he was doing great and they were going to take him over the special care nursery (scn) till I was in recovery. Not a problem. They did the normal test on him as well as a blood sugar test because he was so big. His levels were low, so they asked if it was ok if they gave him a bottle. Sure do what you have to. That night they kept him in the scn, they woke me up a couple times to go down and see him but over all it was a quite night.
Monday was much the same, Little man had spiked a fever and they were running a wide range of test to figure out why. Everything came back fine, his blood cells were low but that was because of the fever. I had happen to notice that while I was feeding him he seemed really really jumpy, and twitching. I mentioned it to the nurse and she says it normal. My mom did the afternoon feeding that day and also made a comment about it.
Tuesday morning, I wake up in my room....feeling well rested but wondered why no one had come down to get me for feedings all night....think this was strange but breakfast was here and I would go down right after. THEN the pedi's doc walks in. He sits down beside me and give me the information that I will NEVER forget for the rest of my life. He said he received a call from the nurses in the middle of the night that little man had stopped breathing a couple time in what they were calling "duskies". He informs me that he believe that the twitching we had noticed yesterday and the duckies made him believe that he thought little man was having seizures. I of course am floored? What was he saying? How could this be happening to us? What was causing them? The questions just kept coming to me. He informed me that they were going to take him down for a ultra sound of his head and as soon as the results came back he would let me know.
He leaves and I of course call my husband to try and give him the news. I can barely speak....he has to get the kids off to camp before he can make the 30min drive up to the hospital. I ask him to call my parents to let them know what is going on as well cause I wanted to go down and see the baby.
Tuesday Afternoon @ 1:37pm we are down in the scn and the phone ring, the nurse comes over and said the doc is on the phone for me, the results are in. They offer me a chair but I refuse. I can handle what every was going to be said.
The doc explains that little man has a pool of blood on the front of his brain the size of a loonie. The pressure of the blood is causing the seizures and they were going to get him started on anti seizure med asap. This of course could take a couple days to iron out but until it did he would be staying at the hospital, there were also going to keep him on antibiotics for the "unknown" fever he was still fighting. I bring up the fact that they still have not done the ultrasound on his kidney. At this point he was urinating and it was the furthest thing from their minds. We need to get the seizures under control and figure out what the infection was.
Wednesday, I'm discharged from the hospital. I was suppose to leave on Tuesday but with everything that happen the ob wanted to keep in for one more day. All day I was talking myself into realizing that he was in the best place, I had 2 other kids at home that also need me. I will say the hardest thing I have ever done is leave that hospital with out little man. I broke down all the way out of the hospital and even worst once I got in the van and started home. I tried to pull it together for the older kids but it was short lived.
We had made the plan that once I came home from the hospital I would be staying at my parents house for a week or so. I need to recover and my husband needed to get back to work. My parents were going to drive the kids to and from camp and would also be there to help with the baby.
We get back to our home, I go down to the bedroom to lay down while my husband went to pick the kids up. As soon as I do, I look over to where the crib is suppose to be. My husband and parents thought it would be best to take it to their house cause we didn't know how long my stay would be at this point because of the seizures. With everything going on, not knowing if we would loss the baby, not knowing really anything or having any answers, it hit me like a ton of bricks. My husband comes home to find me crying hysterically in bed and of course he thinks that the hospital has called. He looks at me with a painfully look and asks "what happen?" when I explained you could see the relief on his face to the point that he almost started laughing (just out of fear). He apologises for what they did and said they were just trying to help and didn't realize it would make me feel that way (I to this day still don't think any of them realize just how scared I was.)
So after a long week of trying to go about normal life with the older boys and doing the hour long drive everyday to the hospital. They called and said that he was well enough to leave the scn but they still wanted to keep him for a couple days. We had figured out that he also had GERD. So they were working on getting him to eat, keep it down and not stop breathing. He had to be hooked up to monitors for 24hrs with out setting it off before they would even consider sending him home. But because he was going into a regular room I was more then welcome to come up and stay with him. I was torn....do I stay home with the older kids or do I go and be with the baby. After talking with my parents and husband it was decided that place I needed to be was with little man. So back to the hospital I went....for god knows how long???
After 2 days and the monitor wasn't going off anymore when he was eating or after, but they did notice that O2 levels still dropped. It was decided that we could go home with an apnea monitor (for those that don't know an apnea monitor has 2 sensor pad that go on the baby's chest, they monitor his O2 level as well as heart rate) so now we were waiting for one to be delivered. It had to be shipped from another city which was over 3hrs away. We should be able to leave in the morning!!!
This is just a very small glimpse into little mans
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