Little Man Part 2

I know I said I would continue introducing my kids, so tonight I thought I would finish with little man.

In my last post on him I explain how at birth he was born with a pool of blood on his brain that was causing him to have seizures. He also suffered from GERD and has kidney issues.

Thankfully we were able to find a medication that stopped the seizures! We were also able to find medication to help with the GERD. And now we could move on to the kidney issue.

So while we focused on the seizures we still needed to have the kidneys checked. When we did, we were informed that we would be going to see the urologist at Sick Kids. That was it. So at the end of August we made the trip to Sick Kids. They did an ultrasound on his kidney and the doctor informed us that there was a blockage in his right kidney (that’s what was causing it to swell) and that he has a narrowing in the utters (the tub that goes from the kidney into the bladder). He needs to stay on his antibiotics daily till we go back in 3 mths. If we suspect that he’s getting a UTI we are to increase the dose to 3 times a day and get his tested for one ASAP.

Thankfully to this day he’s never had a break thru UTI!!!

At the end of November we went back for our 3 month check up. Another ultrasound and worst results. Now they tell us there is a blockage in both kidneys and they want to send him for a Lasik Renal Scan (they will inject him with a low dose of radiation and take multiple pictures of his kidney to see how well they are functioning). We were booked for this test in January.

Januarys appointment comes, I venture to the hospital by myself. We made it threw another ultrasound and the scan. WHAT A DAY THAT WAS :(

It took 3 nurses more than 45 mins to get the IV in his arm to give him the radiation. But little man is a trooper and as long as no one was holding him down he was fine. The minute we all tried to keep him still he cried to the point he was sick. Thankfully he didn’t mind the fact he had a brace strapping him down to the table for the 45min scan. It went from his armpits to his knees. Thankfully he was so tired that he fell asleep for the entire exam!

We go back 5 days later to get the results.

The scan showed that both kidneys were functioning!!! Not at 100% but they were producing urine. We come back in June for another ultrasound. They informed us that at some point he will need surgery on them. Right know they would rather wait till hes older so that its easier to work with. At this point they really aren’t causing an issue so until they do we will see if the blockage works its way out on their own!

So in June I make the long trip again, yet another ultrasound and the news that the blockages are still there and now there is back flow as well (meaning that the urine is traveling back up the tub into the kidneys). We are to continue with the meds and come back in 6 months again.

So this brings us closer to present time. We went 2 wks before Christmas for another ultrasound. Both blockages still there and backflow still present. While doing his physical exam, the doctor gets a strange look on her faces and says she’s going to find another doctor to get him to check something....nope didn’t say what it was...just walked out of the room. 5 minutes later both doctors come back. The second one checks his groin area...they talk and then inform he that he has a weaking in his groin and she thought she felt a hernia (GREAT). Plus they cant find his testicles (double great). Actually I already knew that they hadn’t "dropped" yet cause our GP made a comment about it at his 15 month needles. Sick Kids wanted us to come back 4 weeks later to have them checked again and I convinced them that my GP was seeing him in 4 weeks for needles and already had it on the radar. They agree this is fine as long as I keep the appointment.

So this brings us to the beginning of this month. At little mans 18th appointment the doctor is able to find 1 testicle!!!! He says he can’t feel the other one no matter how much he digs (and he did). He wants to see him at age 2 to check again and we will decide then what to do.

So right now as I type this, little man has 2 kidneys that are functioning but not at 100%, he has a missing testicle, He has multiple food allergies (Was wheat, egg, milk, soy and peanut. Now just peanut and egg). He has out grown his GERDs and if you were to meet him without knowing anything about him, he is a happy, energetic, curious little man who keeps me on my toes more often than not!

I wish he didn’t have to deal with all these medical issues but over all I wouldn’t change him for the world!!!

Little Man you will never understand how much I love you!!!